The breathing/coughing is improving. The cough isn't gone, but it's markedly improved. I even let him sleep all night last night instead of waking him for a breathing treatment.
Of course, it's still bad enough that he can't get his tubes tomorrow. The surgeon's office was very understanding, thankfully. Right now we're rescheduled for next Wednesday. Now we just hope I can get off work. Ay yi yi.
Other than that, Robbie's doing great. I'm on vacation this week, so we're hanging out together. It's been fun. He's been eating well (for him) for the most part. Monday I got about 6oz of food into him. Pretty sure that's a record. He ate a full jar in the morning and half a jar in the afternoon. He did throw a little bit of the afternoon jar back up, but he didn't choke or freak out, so it wasn't as horrible as it could be.
Pretty sure that yesterday he started repeating "all done" when I would say it. Of course, it sounds more like "ah duh" so maybe it's wishful hearing, but I do think he's trying.
That brings his vocabulary to 3:
Uh-oh
Kitty
all done
The only one he says reliably is uh-oh, but whatever. He's getting there. He'll probably have his speech evaluation next month and then we can start work on that a month or so after that.
Movement is going great. He's cruising pretty well now and tonight was even able to use a walk-behind toy to get across the living room. He's a speed demon on his butt. It's so fascinating watching what he chooses to do now that he's in control. We've definitely had to start some baby proofing, including keeping the gate to the stairs & the door to the back (two steps down) closed. It's certainly more work as a parent, but I'm loving every minute of it.
If we could just get him a little better on all-fours, we'd be golden. Crawling would be lovely, of course. More than that, though, it would allow him to transition from laying back to sitting and relieve a lot of his frustration. You can see he wants to do it. He can even get up onto all fours, but he just can't hold it while moving so he can figure it out.
Last week in developmental therapy, his therapist was so pleased at his progress that she remarked that she wouldn't need to see him for very long. Score!
It's been amazing watching him learn new things and learning more and more about his amazingly bright personality. Truly, we could be more blessed as his parents.
--Trish
Best Possible Surgery
8 years ago
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